I was born in Kazakhstan. After being born doctors noticed health problems and I was diagnosed with
mucoviscidosis almost right away, which happens in Kazakhstan very rarely. Parents brought me to
Russia as soon as it was understood that I wouldn’t survive in Kazakhstan. I was almost dying, but in
the Lipetsk municipal hospital I was brought back to life. Since then we settled down in a village in the
Lipetsk Region. There are 3 children in our family. My mother works at a plant, her salary is miserable.
There is no job for the father in the village, so he runs the house. That’s the way we lived, but each
year I felt worse. Doctors in Lipetsk didn’t forward me to Moscow, thinking their way of treatment was
absolutely correct. As it turned out later wrong antibiotics were prescribed and in wrongs doses. One
year I was living in a sequence: a month in the hospital — a month at home — a month in the hospital — a
month at home, and so on.
When I was 17, I was forwarded to Moscow for the first time. By my condition I immediately
started feeling how effective the treatment was. But most importantly I made close friends and
met my girlfriend in the hospital. Many volunteers have visited me and told me lots of information
about treatment of mucoviscidosis which I didn’t know about. They told me about the mutual help
community, lungs transplantation, new medicines and elaboration of the newest drugs. That was the
time I gained hope. First time in my life I started believing that I am not doomed to death and that I have
a chance for a long and happy life, and it’s only necessary to spend effort for it every day.
My request for additional hospitalization to the Russian Children Clinical Hospital was turned down
because I was turning 18. The condition worsened again, things got bad and I wrote to volunteers Nikita
and Yana asking them to help me somehow. They came to my village in order to take me to Moscow and
to make my parents understand that this step was absolutely necessary. It was like a rescue operation.
I think that if they didn’t take me to Moscow at that point, I wouldn’t be alive now. I lived in Nikita’s
apartment for 2 weeks, there he taught me some techniques of kinetotherapy (a special method of
healing the ones ill with mucoviscidosis which helps to clean lungs out of phlegm). I started feeling much
better, and then Nikita and Yana made me accepted to the Children’s Health Sciences Center, where I
was hospitalized to for 3 times in total and where I was put on my feet finally.
I’m fine since then, living in Lyubertsy with my girlfriend and studying in a college in Moscow. But of
course the disease has not disappeared, periodically I go through exacerbations, and in such cases
get the intravenous antibiotics therapy at home. My physician in charge is Amelina Elena Lvovna
from the Municipal Clinical Hospital #57, where the mucoviscidosis center for adults is located. She
recommended to go through a Colistin treatment, otherwise Ps. aeroginosa infection in lungs would
grow, and that would substantially worsen my condition and the prognosis. The bigger the bacteria
colony gets, the bigger is inflammation, the more phlegm appears, phlegm which fills lungs and
complicates breathing. It is certain I will become dependent on oxygen caddy at some point, so I
do everything possible to make this future come as late as possible. With the «Colistin» antibiotic it
is possible to stop lungs from collapse making me able to live my life to the fullest. I’m begging all
compassionate ones to help me raise money in order to buy Colistin!