The birth of the younger daughter became for our family both — a great happiness and a deep grief. Little Olya was born with Klippel-Trenaunay syndrome, i. e. A congenital pathological condition of the circulatory system and the lymph vessels of the left leg and the left buttock. The width of her left leg is 6 cm more than the norm; it is also 2.5 cm longer than it should be. There is a large lymphahemangioma. Very often it bleeds for no apparent reason — this process just cannot be controlled; meanwhile, it is very difficult to cease the bleeding, which inflicts a lot of pain. The vessels of the rectum are also damaged, which causes bleeding as well. For several times loss of blood has caused a faint. Phlebitis (i. e. Inflammation of the vessel wall) often occur in her leg; they hurt badly and inflict a fever. Incompetently got treatment may cause thrombosis, the changing of the blood parameters and even lead to the worst possible consequence. The illness is rather infrequent and has hardly been studied in this country. The only way of treatment we were offered was to amputate the leg.
To accept this variant would, probably, be better than to lose the girl or to make the child suffer from the pain during all her life. We had been almost ready to take this measure, although reluctantly. But we learnt that there was another way. That was the reason why we refused further treatment in this country and consulted the German doctors specialized in this particular illness. Owing to them our little girl is now able to stand and walk; we do observe that her state of health is gradually improving. We are happy to having chosen this way. I think, everyone will make the same choice, won’t they?
However, it still remains a huge problem for us to pay for the next course of treatment. It requires € 7000-10000 to get to each course. My husband is a factory worker; I work as a doctor in the hospital at the same factory. So, it is extremely difficult for us to collect the required sum within a year. Last year, however, we managed to raise the sum — and thus we spent all our savings. Today we have no money to pay for another course. Meanwhile, treatment should be neither postponed nor cancelled. We must cover the bill to RUB 625 175, as it seems to be a ‘ticket’ to a full and happy life for our child. And we must not miss the chance! I appeal to people’s kindness and sympathy, and beg them to help our daughter!