Kosolapov Valera, 13 years old

Since one and a half years Valera has stopped growing. The boy’s diagnostic has revealed a very rare genetic disease — Growth Hormone Deficiency that means the absence of a growth hormone in blood.

The importance of a growth hormone is difficult for overestimating. It is transferred to bones, heart, muscles, kidneys and they start to grow, and participating in an exchange of fibers, fats and micro cells and that is why it is very important at any age. But mostly it is necessary for the child. However, in the nature sometimes there is such genetic mistake: 1 from 150 000 children who were born all over the world, appears without this hormone. Not receiving it in a medicinal kind, such children become invalids with low growth.

Modern doctors are able to overcome this trouble. The scientists of Denmark have invented an effective and safe medicine “Norditropin”, completely identical to a human hormone. The medicine helps children to grow and develop in a way if they were absolutely healthy. The cost of an annual rate is about 188,000 rubles, and the medicine should be taken daily. But it is necessary to continue the treatment only till 16 years, and now Valera is already 13. After that the child’s organism will be finally generated. The boy’s parents cannot treat their sun by themselves. Valera’s mum — the rural teacher, also takes care of her son together with her mother. Other relatives have already made and have sold everything that they could.

Local structures of public health services firstly allocated money for child’s treatment; however two years ago Valera was refused in a financial support in favor of wards of younger with similar disease. The boy’s treatment with “Norditropinom” has interrupted for half a year. Then he sharply began to lag behind in the development: his speech and movements were slowed down, the progress at school was also slowed down, and the growth was completely stopped.

Tatiana, his mum and his grandmother Valentina fight with grate courage for the boy’s health. They are writing letters to all public health organizations and administrative structures, the announcements in local newspapers have published, the ask for help has sounded on TV and radio.

The women have also addressed to the commercial organizations. One inhabitant of St.-Petersburg, casually having heard about this family’s mountain, has invited Valera’s grandmother to live together in her house as to try together to collect the necessary sum by means of philanthropists from mega city.

Valentina’s efforts have appeared not vain. Though the means collected for half a year are not sufficed for full payment of treatment, the representatives of public health establishments from Kursk region have been surprised by selflessness of the boy’s relatives. The missing sum has been given from the local budget, and Valera’s supply by a necessary medicine has managed to be prolonged for additional 1 year.

Now Valera’s grandmother is in St.-Petersburg again, begs money in the underground for the next year treatment.

From the story of one volunteer: