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28 January 2011
In Russia there aren’t many cystic fibrosis specialists, so Radmir has to go all the way to Moscow that is 2,000 km away to see the doctors.He’s been fighting pseudomonas aeruginosa, lung infection, for two years. In October 2010 doctors tried to give him inhalations of Tobi. The effect was astonishing. Doctors insist Radmir get treated with Tobi for 6 months, but his parents couldn’t get the medicine for free. Local government refused to help them, since the antibiotic is not on the vital medicine list. How can some list dictate whether a child lives or dies?! We ask you to help Radmir breathe freely again!
From the letter of Radmir’s mom:
My son gets worse every day, he gets sick very often. Now he’s in a hospital in our city, doctors are doing everything they can, but they don’t have the necessary medication. Because of pseudomonas aeruginosa it gets harder and harder to breathe, but we can’t buy the medicine that’d make him better. I cry at nights when I see him suffer. He knows about his disease, he knows the possible outcome in case there are no drugs. We know that you help many children, and we hope that you will also help my son.
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