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Zolotukhina Kseniya, 13 years old

Date of birth: 12 February 1997.
Shablykino town, Orlovsk region.

Diagnosis: cystic fibrosis. To fight pseudomonas aeruginosa that is destroying her lungs, Kseniya needs to take «Kolistin» for three months. This medicine is the most effective, but it is not in the reimbursement list. Three-months supply costs 120,000 rubles (3,900 dollars).
1 September 2010

Again we ask you to help Kseniya. In 2008 you already helped to buy Kolistin for her, which was enough for one course. It gave great results. After that course Kseniya was on weak medication that does not treat the infection, but prevents its outbreak. Pseudomonas aeruginosa did not bother her for almost 1,5 years. It is a significant achievement. Now the infection has come back and the regular drugs do not help anymore. Kseniya needs Kolistin again. This medicine is very expensive and its price increases each year. Today one course will cost 120,000 rubles (3,900 dollars). Kseniya’s parents cannot find that much money.

Kseniya’s mom wrote:

Your child will live, but only if you find money.» It is horrifying to hear this from doctors and the government. It is not Kseniya’s fault, that her organism reacts positively only to Kolistin, which is impossible to get for free from the government. We do everything we can for our daughter. We buy all the medicine we can. But this particular one is way out of our budget. Kseniya is such an active child! She loves horses, dancing, going to school. How can I explain to her, that mommy and daddy cannot reduce her suffering, cannot do anything to help her breath easier? I beg you to help us. Kseniya is in a lot of pain!

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